Situation clinique complexe en anténatal, l’éclairage des usagers (notice n° 777300)

détails MARC
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control field 20250123111302.0
041 ## - LANGUAGE CODE
Language code of text/sound track or separate title fre
042 ## - AUTHENTICATION CODE
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100 10 - MAIN ENTRY--PERSONAL NAME
Personal name Evrard, Anne
Relator term author
245 00 - TITLE STATEMENT
Title Situation clinique complexe en anténatal, l’éclairage des usagers
260 ## - PUBLICATION, DISTRIBUTION, ETC.
Date of publication, distribution, etc. 2020.<br/>
500 ## - GENERAL NOTE
General note 42
520 ## - SUMMARY, ETC.
Summary, etc. Certaines situations cliniques de diagnostic anténatal sont particulièrement complexes en raison notamment d’atteintes multiples du fœtus. Souvent, elles amèneront les parents à décider d’interrompre la grossesse, tant le pronostic pour la qualité de vie du bébé est sombre. Nous présentons ici une situation clinique spécifique, où les parents d’un futur bébé gravement atteint vont désirer poursuivre la grossesse mais aussi, pendant son hospitalisation, s’opposer à l’arrêt des interventions médicales proposé par l’équipe pédiatrique. Face aux questionnements multiples des soignants concernés, nous souhaitons apporter notre regard de parent écoutant des parents. Au-delà de ce cas particulier, notre objectif est de permettre aux soignants, en intégrant les enjeux spécifiques des parents, d’être mieux ajustés à leurs besoins et ainsi d’améliorer encore la qualité de leurs pratiques.
520 ## - SUMMARY, ETC.
Summary, etc. Some clinical situations in antenatal diagnosis are particularly complex due to severe foetal malformations. These abnormalities are often the reason that the parents terminate a pregnancy, as the risks regarding the baby’s future quality of life are too high. This article presents a specific situation in which the parents, despite the severe abnormalities of their future child, decide to continue the pregnancy. In addition, during the child’s hospitalisation, they opposed the termination of medical procedures requested by the paediatric team. Regarding the many questioning of the medical team, we would like to contribute our commentary as parents. Specifically, as parents who listen to other parents. Aside from the case studied here, our aim is to aid medical teams to be more adjusted to their patients and to improve their practice, by taking into account what is at stake for the parents.
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Topical term or geographic name as entry element diagnostic anténatal complexe
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Topical term or geographic name as entry element vécu des parents
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Topical term or geographic name as entry element analyse des usagers
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Topical term or geographic name as entry element parents’ feelings
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Topical term or geographic name as entry element users analysis
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Topical term or geographic name as entry element antenatal diagnosis
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Topical term or geographic name as entry element temporality
786 0# - DATA SOURCE ENTRY
Note Périnatalité | 12 | 2 | 2020-04-19 | p. 43-48 | 2678-6524
856 41 - ELECTRONIC LOCATION AND ACCESS
Uniform Resource Identifier <a href="https://shs.cairn.info/revue-perinatalite-2020-2-page-43?lang=fr&redirect-ssocas=7080">https://shs.cairn.info/revue-perinatalite-2020-2-page-43?lang=fr&redirect-ssocas=7080</a>

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