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With a beating heart. The story of an institutional project that takes the affective life of people with disabilities into account

Par : Type de matériel : TexteTexteLangue : français Détails de publication : 2022. Sujet(s) : Ressources en ligne : Abrégé : In spite of the societal evolutions and the evolution of the public policies over recent years, reaffirming the rights of the persons in situations of handicap concerning the question of their affective life remains a sensitive and complex subject for social institutions. Generating suffering within families, sometimes among the persons concerned, this concern creates difficulties for the professionals who accompany them in the medicalised educational centres, living homes, medicalized establishments, sheltered work and social life support services…How should we take into account individuality in a group, listen to the most intimate aspects, analyze fears in order not to overprotect? We can’t think about inclusion and self-determination without giving this right the place it deserves as a fundamental need recognized by the World Health Organization, an integral part of Health. How can we develop a common culture, build an ethical base to accompany each person according to his or her needs with care and respect? More than ten years ago, the apei association of the Dieppe region launched an institutional project to take into account and respect the intimacy and to accompany the affective and sexual life and parenthood of people with disabilities. It has chosen a cross-disciplinary, exploratory and reflective approach in three stages, involving all the professionals, offering tools, training, and spaces for the persons accompanied and others for their families. This is an engaging, structuring project that has been awarded several prizes and that continues, evolves, and is constantly questioned.
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In spite of the societal evolutions and the evolution of the public policies over recent years, reaffirming the rights of the persons in situations of handicap concerning the question of their affective life remains a sensitive and complex subject for social institutions. Generating suffering within families, sometimes among the persons concerned, this concern creates difficulties for the professionals who accompany them in the medicalised educational centres, living homes, medicalized establishments, sheltered work and social life support services…How should we take into account individuality in a group, listen to the most intimate aspects, analyze fears in order not to overprotect? We can’t think about inclusion and self-determination without giving this right the place it deserves as a fundamental need recognized by the World Health Organization, an integral part of Health. How can we develop a common culture, build an ethical base to accompany each person according to his or her needs with care and respect? More than ten years ago, the apei association of the Dieppe region launched an institutional project to take into account and respect the intimacy and to accompany the affective and sexual life and parenthood of people with disabilities. It has chosen a cross-disciplinary, exploratory and reflective approach in three stages, involving all the professionals, offering tools, training, and spaces for the persons accompanied and others for their families. This is an engaging, structuring project that has been awarded several prizes and that continues, evolves, and is constantly questioned.

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