Considering information practice and information experience through the lens of rare disease
Type de matériel :
TexteLangue : français Détails de publication : 2023.
Sujet(s) : Ressources en ligne : Abrégé : This article investigates the process of information seeking about rare disease, by questioning the concepts of information practice and information experience. Our study shows the extent to which information seeking is inseparable from the trajectory of parents of children with developmental anomalies; such information seeking participates directly in parents’ information experience. Our research highlights the role of emotions in the information seeking process. Emotions condition parents’ information experience and influence the information practices of health professionals.
Nous n'avons pas d'exemplaire de ce document
90
This article investigates the process of information seeking about rare disease, by questioning the concepts of information practice and information experience. Our study shows the extent to which information seeking is inseparable from the trajectory of parents of children with developmental anomalies; such information seeking participates directly in parents’ information experience. Our research highlights the role of emotions in the information seeking process. Emotions condition parents’ information experience and influence the information practices of health professionals.
Réseaux sociaux